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Help us learn more about Sturge-Weber & birthmarks

By completing your profile, the information will be utilized to facilitate research and clinical trials that could lead to future treatments and cures for Sturge-Weber and birthmarks…for a reason, a season, or a lifetime.


“the stronger the wind, the tougher the trees”


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Research Studies

There are ongoing and upcoming opportunities to participate in clinical trials and research to increase the pace of discovery in Sturge-Weber and Port Wine Birthmarks. Researchers with National Institutes of Health funding grants seek volunteers with Sturge-Weber syndrome and birthmarks to participate in studies.

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The Sturge-Weber Forum

This is a forum for discussions about the medical manifestations associated with Sturge-Weber and quality of life and care concerns. Visit the Sturge-Weber Forum to discuss the illness, treatment and more, and to interact with experts and others affected by the condition.

Visit the international Sturge-Weber Foundation Hub and also follow us on Twitter for more information and news updates

Click here to register now!