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Help us learn more about Sturge-Weber & birthmarks

By completing your profile, the information will be utilized to facilitate research and clinical trials that could lead to future treatments and cures for Sturge-Weber and birthmarks…for a reason, a season, or a lifetime.


“the stronger the wind, the tougher the trees”


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Research Studies

There are ongoing and upcoming opportunities to participate in clinical trials and research to increase the pace of discovery in Sturge-Weber and Port Wine Birthmarks. Researchers with National Institutes of Health funding grants seek volunteers with Sturge-Weber syndrome and birthmarks to participate in studies.

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The Sturge-Weber Forum

This is a forum for discussions about the medical manifestations associated with Sturge-Weber and quality of life and care concerns. Visit the Sturge-Weber Forum to discuss the illness, treatment and more, and to interact with experts and others affected by the condition.

Visit the international Sturge-Weber Foundation Hub and also follow us on Twitter for more information and news updates

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We use cookies to ensure that we give you the best experience on our registry. Your information is kept confidential and is secure. Should you have any questions, please contact us at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Click here to register now!